Guillermo and I stayed at Mom's house the past two nights, which is the reason for no updates until now. We had no internet at her house.
So, on Wednesday the 7th, I went to the hospital early because they had said she would be discharged that day. She was doing ok, still weak and dizzy but it didn't seem to be as bad. We took a walk around the floor that morning and she did fine. At around 12 or 12:30, she was finally released from the hospital. Guillermo met us there and helped take things down to the car.
Mom was happy to be at home and didn't go to bed right away. She sat down to eat the lunch that the hospital had packed up for her and then she walked around a little bit and then went to her bed to lie down.
In the evening, we fixed supper and she didn't really want to eat but knew she had to. She ended up eating all of it! Then, after supper she puttered around in the kitchen a little bit, cleaned the counter by the sink (which I had already done but now it's twice as clean!) and she dried some of the dishes that I had washed. She seemed happy to be "doing regular everyday home things", but she also had to stop several times to - what it seemed - catch her breath. She didn't have to do a thing, but we knew activity was good for her especially since she had been doing so much lying around, so we let her do some things.
Late that night, though, she complained of her chest hurting. Especially when she would try to lie back. So, we fashioned for her as best we could a pyramid of pillows and blankets so she could sit back against those. That seemed to help. We all went to bed wondering how the night was going to go.
So, it was a rough night. She got up at around 3am and she was in a lot of pain. It was pretty scary for me because I wasn't sure if we should call an ambulance, or just take her to emergency or what?!!? At around 3:30 I decided to call her doctor who called me back right away. He said with what I was describing and how her vitals had been, that he didn't think it was an emergency. He prescribed tylenol (which Guillermo ran out to buy) and said to bring her in in the morning. Isn't that just the typical response?? So, we gave her the acetominaphen at around 4 and it wasn't until around 4:20 that she said she is starting to feel like it is kicking in and was feeling a little better. So, at 4:30, we all went back to bed hoping for the best. The rest of the night went fine, Mom was able to sleep then until morning.
In the morning, Nov. 8th, Mom came out to have breakfast. She seemed fine, just still weak and somewhat short of breath. She still had her pains, but not as bad. At around 11am, a nurse came to the house. This was follow-up care to monitor her meds and her blood count. The lady's name was Shawna and she was very nice - it mostly was a filling-out-paperwork/explaining-their-services visit.
Later, at around 12:30, a guy from Physical Therapy came around, which was also set up through the hospital. This preliminary visit was to get to know Mom and her capabilities. He had her do various things like walk around the house, show him how she takes a bath, how she would leave the house, and stuff like that. He found many things that needed to change, such as the towels on the floor shouldn't be there, she should have a chair in the shower, she shouldn't walk down the ramp to the backyard since it has no rail to hold on to, she should have rails on her bed to help her get in and out, and that she should use her cane whenever she walks!!!
After physical therapy left, I took Mom to the doctor's office and after examining her, Dr. Calle decided she should go back into the hospital because her pain may be coming from her gall bladder. It was very disappointing news.
So, we packed up a few items back at her house and then we went over to the hospital. And waited. Poor Mom. She has done so much waiting throughout much of this. Waiting, waiting, waiting everywhere. It took a while to go through admissions and then we sat and waited for her room to be ready. When Kathy came to visit, we had told her that Mom was going to be put in room 337 when it was ready so Kathy went straight there. When she saw no one in the room, she went back downstairs and found us. We told her we were waiting for the room to be cleaned and Kathy told us it looked clean and ready to her! So, we notified admissions, who called to the floor, who checked the room and said yes, it is ready. Those people need so much help with their jobs. So, Mom was taken to her room and the waiting began again.
Mom was placed on a liquid diet until several tests could be run. We made sure she got some chicken broth which she really liked. Guillermo and I spent the night again at her house.
In the morning, we visited Mom and there seemed to be no change with anything. Still on a liquid diet, still waiting. Guillermo left for our apartment around 9:30am. I guess Mom ate too many liquids this morning, or too much greasy chicken broth because she got sick a little while after eating. It was good I was there to help her with that. At about 1pm, I left to get the mail from her house and to get myself something to eat. When I got back, she still hadn't been given anything else to eat, no more tests were being done, she was just there. Doing nothing, nothing happening. So, I went downstairs to speak to a patient advocate and they said they would send one up to Mom's room. Shortly after that, I was told the Dr. had arrived and would be coming in to talk with us. And they also told me that the doctor had changed Mom's diet to a soft-foods diet so she eagerly ate some banana and a slice of bread that I had brought for her. Finally. Some change.
A floor manager came to talk with me and the patient advocate did come later. They both were helpful and one of them suggested we ask for a pulmonologist to see Mom. I went back home at 4:20. I called Mom around 5:45 and she said she was eating. At around 6:45, I called her and she said she was in a mess and that no one was coming to help her. So, I called the nurses station from home and they said they'd send someone to her room right away. Unfortunately, I found out later that was "shift-change" time, so that made it worse.